Important news about how your own (and family members too) NHS Medical data and Personal data will be shared by your GP. You need to ACT NOW !
care.data is going to begin very soon, and it will affect every man, woman and child in England and their confidential medical records.
All households in England will shortly receive a junk mail leaflet through their letterbox about this programme, entitled
“Better information means better care” .
This leaflet is not about sharing your medical information with doctors, nurses and other health professionals outside of your GP surgery.
It’s not about the ways in which your GP shares information about you as part of providing essential medical care.
It’s not about ensuring that hospital specialists have the information that they need when you are referred to see them.
And it’s not about submitting information so that GP surgeries and hospitals are paid appropriately for the care that they provide.
You can get the NHS leaflet online – DOWNLOAD IT HERE
(This leaflet is about care.data.. Not that you’d know, since “care.data” is never mentioned in the leaflet. Or how your own medical records ‘data’ are being shared.)
Many of you, will not wish to allow your personal information to be processed in their (the new NHS) way – and that is YOUR right as a patient. The care.data project is entirely voluntary for patients and… YOU DO NOT have to agree to your records being used in the ways described below.
You have to act if you wish to preserve your confidentiality. Unless you do, care.data will go ahead and involve your GP records by default.
But you can only act if you are aware of care.data – and very many people do not know about it, will not know about it, or will not understand what care.data is and is not about.
Who will have access to my uploaded data ?
Information from your care.data record will be made available to organisations both within the NHS, such as NHS commissioning bodies (e.g. CCGs), but also outside of the NHS, such as :
- Pharmaceutical companies
- Health charities
- Universities and other academic organisations
- Hospital trusts
- Medical Royal Colleges
- Information intermediaries
- Commercial companies
Initially, care.data will be used primarily for NHS commissioning purposes, which is the planning of healthcare services.
HOW DO I OPT-OUT ?
If you have decided to opt out of care.data then it’s very easy to do so.
First, download an opt-form:
- CLICK HERE to DOWNLOAD a .pdf leaflet, which can be printed off – it’s double-sided and can be folded (fits in a DL envelope). It has the information YOU need and is easy to fill in.
- Your GP surgery may also have its own opt-out form downloadable from its website. (if not please use the above forms found via the links).
The NHS is not providing an “official” or mandatory opt-out form that you are obliged to use, the NHS wanted to hide this option from you!
Please fill in this form in, and hand it into, post it to, email it to or fax it – to your GP surgery.. NOW !
That’s it. Simple.
The two opt-codes (9Nu0 and 9Nu4) will be added by your surgery, no questions asked. And your personal and medical data will be protected.
Note: Don’t forget to opt-out your children, or those for whom you have parental responsibility, as well.
- State that you wish to opt-out of care.data
- Request that both the 9Nu0 and 9Nu4 codes are added to your GP records
- Remember to include full names and DOBs (and your address if you are happy to)
Need more help, and why you need to Opt-Out from this NOW..? here’s three links, to tell you why: